Aaah, the vest...the vest...the long awaited vest. I know I am an emotional person, so I kind of suspected I would maybe feel a little emotional over Reese getting the vest, even though it has been something we have been soooooo looking forward to. The vest came on Tuesday, but today is the first day she used it as we had to wait for a RT to help us set it up. It's hard to even put into words. The vest is just so much more than a vest...it represents everything about CF. I KNOW it will make our lives a whole lot easier, but honestly, it just made me sad thinking that this will be a part of her life forever now. She will have to do this every single day (that is if she isn't rebellious :)) for the rest of her life. And it's just not natural...to see her little body shaking like that just made my heart hurt...knowing WHY she is doing this and the reason she HAS to do it. However, that being said, THIS is OUR normal so we are just so GRATEFUL for such an invention to help keep our Miss Reese healthy and have a good quality of life!!!
Reese really did so well with her new vest!!! This morning when the RT was here, she cried some just because she didn't know what the heck was happening. After about a minute into the treatment, she started to get used to it and did well the rest of the 30 minutes. Tonight when I went to get the vest out, she said, "no, no no" but then did fine once she got it on and started shaking. She even sat in her own little chair for the last half of it. I think the hardest part is going to be getting her to sit STILL for 30 minutes 2x/a day. We're definitely going to beef up our DVD collection!!! :)
Now being the scrapbooker that I am, I just need to get some fun embellishments to jazz up her machine that her vest hooks up to. Maybe some blingy bling!!!! Every girl needs a little bling, right?!?
Reese, you rock. Every day you make us so proud of you. You are our hero and the Lord has blessed you with an incredibly strong and beautiful spirit. I am so thankful to be your mommy and love watching and being a part of every new milestone you reach. I love you, love you, love you sweet darling! Kisses, Mommy
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About Me
- reeselane
- I am a mommy to Reese, wife to Kevin, and saved by the grace of our Father. I am a stay at home mommy and have recently taken on the venture of selling Arbonne! I love spending time with our amazing family and friends. Scrapbooking and shopping are hobbies of mine and my new passion is finding a cure for Cystic Fibrosis. Reese Lane ~ the light of our lives and proof God does exist. Reese was born on April 10, 2009 and has been bringing us indescribable joy ever since. On April 20, 2009, we were shocked to find out Reese has Cystic Fibrosis. As scared and overwhelmed as we felt at the time, we have slowly learned to adjust and continue to rely on God and His provision. We've been privileged to meet some wonderful new friends and have had the opportunity to get actively involved in the "CF Community." Reese is such a special little girl, and we have no doubt God purposefully chose her for a very specific reason. We feel so incredibly blessed to be Reese's parents and wouldn't have it any other way. We started this blog so we could "document" the happenings in our lives...we don't want to miss a thing!!! It's also a great way for our family and friends to keep up with us as well.
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