I apologize I am so last minute with getting the details of our Great Strides walk out! Only 3 days until the big day! We are looking forward to a gorgeous, sunny day spent with our family and friends and other CF Families and Fighters to raise some BIG TIME research dollars!
The walk is at Spencer Park (it's the same place as the dog park, located right off of Cliff Ave across from Tuthill Park and by I229...can't miss it). Let me know if you need help finding it. The walk starts at 10:00 am and registration starts at 9:00 am. I would highly recommend registering online to walk so you don't have to spend time that day doing it. Here's the link:
http://www.cff.org/great_strides/find_a_walk_site/
I would love to get a Team Reese picture around 9:45 if we can. We will have a canopy tent there as well as many "Team Reesers" running around so you can't miss us. I will also have t-shirts there if you ordered one. I am told there is going to be an option for either a 5K or a 10K walk. However, you can walk as far or as long as you'd like...pretty informal. We just want you to have a good time. There will be a lunch served after the walk along with an announcement of our Grand Total...it's gonna be HUGE! ;)
Thank you so so SOOOOOO much for supporting us. We really truly could not do this without the love and generousity from you. We LOVE you and can't wait to see you Saturday!!!
If you are not able to walk but would still like to make a donation, you can do so here: http://www.cff.org/Great_Strides/EmilyPetoske7240
Wednesday, June 1, 2011
Tuesday, May 17, 2011
Days
Most days I am ok. Most days I can carry on with our daily lives with some level of normalcy (as normal as it can be with a 2 year old...ha ha!) although CF is never really that far from my mind. After all, daily doses of enzymes and trying to fanagle a 2 year old into a shaking vest twice a day are firm reminders that we are in fact, fighting to keep our girl healthy. Most days I can do our routine things without much deep thought about CF. At least not the deep thoughts I used to have after Reese was first diagnosed. Now this is our life...this is OUR normal.
But some days are just plain hard. Some days I get sucked into the stories of precious young lives taken far too soon. Some days I go to a resource website or a social media group for a question and I happen to glance at the grim news from another mom of a CFer. Some days I want to scream at the top of my lungs and just BEG God for this to all just go away.
But ALL days, this is our reality and CF is part of our life. So ALL days I thank God for our girl and for the time He gives us with her. ALL days I love her more and more. ALL days I look at her and am so so so proud of her. ALL days I do whatever I can to make sure she stays healthy. ALL days she inspires me. ALL days she is full of sparkle and life.
And ALL days I pray for a cure.
http://www.cff.org/great_strides/emilypetoske7240
But some days are just plain hard. Some days I get sucked into the stories of precious young lives taken far too soon. Some days I go to a resource website or a social media group for a question and I happen to glance at the grim news from another mom of a CFer. Some days I want to scream at the top of my lungs and just BEG God for this to all just go away.
But ALL days, this is our reality and CF is part of our life. So ALL days I thank God for our girl and for the time He gives us with her. ALL days I love her more and more. ALL days I look at her and am so so so proud of her. ALL days I do whatever I can to make sure she stays healthy. ALL days she inspires me. ALL days she is full of sparkle and life.
And ALL days I pray for a cure.
http://www.cff.org/great_strides/emilypetoske7240
Tuesday, May 3, 2011
A day at the park
I hate to be a complainer-pants about the weather, but it has pretty much been rotten. Windy, cold, rainy...ugh. But, it feels like we finally may be starting to see a glimpse of spring...so fingers crossed. We were able to get out to the park recently on our ONE nice day in April (just kidding, but honestly it's not too far from the truth). It was such a different experience than our trips to the park last year. Reese is way more independent and is able to do so much more! I'm looking forward to spending MANY days at the park and we are fortunate to live close to several of them! Now all we need is nice weather :)
Wednesday, April 27, 2011
Happy Easter!
Easter was so much fun this year! Reese totally got into dying and decorating the Easter eggs and for about 3 days afterward, she wanted to just look at them. She would wake up and say, "Easter eggs?" and then we would have to check in on the eggs. LOL.
Reese woke up in Emery on Easter Sunday and got her Easter baskets...yes, she got many baskets this year. Rifling through them helped pass the time during her treatment...and I'm not even sure if she knew she had her shaking vest on! We got a call that my grandparents weren't feeling well and we were planning to spend the day with them so that was a bummer. We still went to Yankton to have Easter brunch and were able to stop by and see them for a little bit so we were grateful for that time with them. We also had our Easter egg hunt there. Reese LOVED it! My favorite picture is the one of her running toward the blue egg...it just makes me happy.
Most importantly, we were so glad to celebrate Jesus' resurrection on Easter Sunday. Easter Blessings!
Reese woke up in Emery on Easter Sunday and got her Easter baskets...yes, she got many baskets this year. Rifling through them helped pass the time during her treatment...and I'm not even sure if she knew she had her shaking vest on! We got a call that my grandparents weren't feeling well and we were planning to spend the day with them so that was a bummer. We still went to Yankton to have Easter brunch and were able to stop by and see them for a little bit so we were grateful for that time with them. We also had our Easter egg hunt there. Reese LOVED it! My favorite picture is the one of her running toward the blue egg...it just makes me happy.
Most importantly, we were so glad to celebrate Jesus' resurrection on Easter Sunday. Easter Blessings!
Sunday, April 24, 2011
Two years old!
On April 10, our girl turned 2!!!! I'm still adjusting to that...to me she's still just a baby. Well not really, but I suppose she'll always be my baby. We had the pleasure of celebrating our Miss Reese this year on her birthday with a Milk and Cookies party! We had an awesome day with our family and friends! It was so much fun watching all of the kids interacting and playing together...and it's only going to get more fun! Here's a few pictures of Reese's special day!
Friday, April 15, 2011
FUNdraising update.
It feels like life has been a little bit of a whirlwind lately! I feel like I'm finally getting a chance to relax a little bit...well as much as you can relax with a toddler always on your heels. I wanted to take some time to recap some of the fundraising that's been going on in our world.
On March 29 we had our Tip-A-Stampede night at both Applebees here in town. We ended up raising....insert drumroll....$6,954!!! Wooo Hooo! The Stampede hockey players waited tables and all of the tips collected go to the CF Foundation. Such a cool concept! We have to say a big THANK YOU to Jim Loria and the Stampede and also to Applebees for making this event even possible. Also a huge thank you to our family and friends who worked the event and who came out and supported us by eating there and leaving their generous tips! We are blessed. Period.
Fast forward a few days to April 2. I had the opportunity to go to AZ to visit my dear friend Shannon and her family and also partake in an amazing fundraiser for CF! My cherished CF mommy friend Rachel and her husband Jeremy had their annual teamASHER silent auction fundraiser and raised over $16,000!!! I'm still in awe! Rach worked so hard on this event and it was nothing less than spectacular! It was such an privledge to be able to be there and not only watch the bids keep going higher and higher, but to just see the incredible, sincere support and love that surrounds this family. Truly inspiring. And not only was an insane amount of money raised, but their sweet boy in Heaven, Paxon, was honored through all of it. Here's a pix of Rachel and I enjoying the GORGEOUS sunny day! Love you friend!
Here is Shanny and I enjoying the festivities and gettin' our bid on!
Now fast forward again to April 9. We had our CF Night at the Stampede hockey game fundraiser. We ended up raising a total of $1,705 with this event. We pre-sold tickets and a portion of ticket sales, plus all of the "chuck-a-puck" money goes to the CF Foundation. It was such a fun night out with friends and family and the Stampede won! Again, we have to say a huge thank you to Jim Loria and the Stampede and our friends and family who helped us work the event and who came out to support us. We are so grateful to have such an awesome team of warriors fighting with us. We love you all and you are part of our miracle! Unfortunately Reese missed the game because we decided to leave her home as she was just not herself the afternoon of the game. Since her birthday was the next day, we didn't want to risk her getting sick or run-down from all the excitement. Luckily she got to stay home with Grandma and they had a blast together.
Here's a pic of my friend Emily and I at the game wearing our new Stampede hats :) Thanks Em!
Another event that I just have to mention because it's so darn sweet and just downright cute, is a little lemonade stand my friend Sam and her 3 boys had in their neighborhood. It started out as kind of a "pay it forward" assignment in their church and they were given money to use to help someone. How humbling that they chose to help OUR someone. They raised $129 for Team Reese and I'm just so inspired their sweet spirits. Thank you Miller's! We love you!
Whew...so, the march continues and Great Strides is just around the corner. We are continuing our fundraising efforts and our quest for a cure. If you'd like to donate, here's the link:
http://www.cff.org/great_strides/emilypetoske7240
Also, I cannot forget about the BIG EVENT...Reese's 2nd birthday! That's my next post, so stay tuned.
On March 29 we had our Tip-A-Stampede night at both Applebees here in town. We ended up raising....insert drumroll....$6,954!!! Wooo Hooo! The Stampede hockey players waited tables and all of the tips collected go to the CF Foundation. Such a cool concept! We have to say a big THANK YOU to Jim Loria and the Stampede and also to Applebees for making this event even possible. Also a huge thank you to our family and friends who worked the event and who came out and supported us by eating there and leaving their generous tips! We are blessed. Period.
Fast forward a few days to April 2. I had the opportunity to go to AZ to visit my dear friend Shannon and her family and also partake in an amazing fundraiser for CF! My cherished CF mommy friend Rachel and her husband Jeremy had their annual teamASHER silent auction fundraiser and raised over $16,000!!! I'm still in awe! Rach worked so hard on this event and it was nothing less than spectacular! It was such an privledge to be able to be there and not only watch the bids keep going higher and higher, but to just see the incredible, sincere support and love that surrounds this family. Truly inspiring. And not only was an insane amount of money raised, but their sweet boy in Heaven, Paxon, was honored through all of it. Here's a pix of Rachel and I enjoying the GORGEOUS sunny day! Love you friend!
Here is Shanny and I enjoying the festivities and gettin' our bid on!
Now fast forward again to April 9. We had our CF Night at the Stampede hockey game fundraiser. We ended up raising a total of $1,705 with this event. We pre-sold tickets and a portion of ticket sales, plus all of the "chuck-a-puck" money goes to the CF Foundation. It was such a fun night out with friends and family and the Stampede won! Again, we have to say a huge thank you to Jim Loria and the Stampede and our friends and family who helped us work the event and who came out to support us. We are so grateful to have such an awesome team of warriors fighting with us. We love you all and you are part of our miracle! Unfortunately Reese missed the game because we decided to leave her home as she was just not herself the afternoon of the game. Since her birthday was the next day, we didn't want to risk her getting sick or run-down from all the excitement. Luckily she got to stay home with Grandma and they had a blast together.
Here's a pic of my friend Emily and I at the game wearing our new Stampede hats :) Thanks Em!
Another event that I just have to mention because it's so darn sweet and just downright cute, is a little lemonade stand my friend Sam and her 3 boys had in their neighborhood. It started out as kind of a "pay it forward" assignment in their church and they were given money to use to help someone. How humbling that they chose to help OUR someone. They raised $129 for Team Reese and I'm just so inspired their sweet spirits. Thank you Miller's! We love you!
Whew...so, the march continues and Great Strides is just around the corner. We are continuing our fundraising efforts and our quest for a cure. If you'd like to donate, here's the link:
http://www.cff.org/great_strides/emilypetoske7240
Also, I cannot forget about the BIG EVENT...Reese's 2nd birthday! That's my next post, so stay tuned.
Thursday, April 7, 2011
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